Primary Objective
1\. To assess the impact of a participant support community on illness perception, emotional wellbeing and feelings of isolation among participants diagnosed with NECC.
Secondary Objectives
1. To understand how peer support affects communication with healthcare providers.
2. To explore how the support community affects coping strategies.
3. To evaluate the perceived value and acceptability of the support community structure and delivery.
4. To identify unmet needs and challenges experienced by participants with NECC.
Age
18–any
Sex
ALL
Healthy volunteers
Not accepted
You may be eligible if
Eligibility Criteria
Histologically confirmed NECC.
Aged 18 years or older.
English proficient.
Provision of signed and dated informed consent form.
Stated willingness to comply with all study procedures and availability for the duration of the study.
Access to necessary resources for participating in a technology-based intervention (i.e., computer, smartphone, internet access).
Clareo Health | The Impact Of A Patient Support Community On Patients With Neuroendocrine Cervical Cancer: NECC Peer Support
