Saves the questions and what to expect into your notes, next to the visit they belong to.
Keep this study
Lead
University of Rochester
With
National Institutes of Health (NIH)
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Age
65–any
Sex
ALL
Healthy volunteers
Not accepted
You may be eligible if
For nephrologist:
Member of Strong nephrology group working at Strong Memorial Hospital
Treat patients with CKD
For patients:
Age ≥65 years old
Presence of advanced CKD stage 4 or 5 (i.e. e GFR ≤ 25 ml/min)
Patient's nephrologist is enrolled in the study, and has seen that nephrologist at least once
Speaks English
Have not attended a dialysis education class or met with the dialysis education coordinator.
Have not made a dialysis decision
For Caregivers:
Self-identified caregiver (per definition:"family member, partner, friend or someone else who is involved with your health care issues, for example, someone who you talk to about personal issues including medical decisions or who comes to doctor appointments with you. This person may also help with routine day-to-day activities, like transportation or paperwork.")
21 years of age or older.
You may not be if
For Nephrologists:
\- Expecting to leave in six months.
For Patients:
Patient has already been seen by a palliative care clinician or is enrolled in hospice
Is already on dialysis
Hospitalized at the time of recruitment
Cognitive impairment
Does not speak English
For Caregivers:
If Support is offered primarily in a professional role (e.g., clergy).
Cognitive impairment
Clareo Health | Shared Decision Making in Dialysis
