About Pricing FAQs Blog

Loading clinical trials...

Your health journey, clearly organized.

Find Clinical Trials →

Legal

Privacy Policy
Terms of Service

© 2026 Clareo Health. All rights reserved.

PRecIsion Medicine in CardiomyopathY | Clinical Trials | Clareo Health

Back to clinical trial search

Active Not RecruitingNCT04036799

PRecIsion Medicine in CardiomyopathY

This is a retrospective cohort study of pediatric hypertrophic cardiomyopathy (HCM) patients using chart and registry review methodology. The studies objective is to develop and validate a sudden card...

Lead sponsor: The Hospital for Sick Children•View source on ClinicalTrials.gov

Clareo plain-language summary

What this study is about

Generating AI summary...

Save this trial guide to your notes

Keep your clinical trial research organized — questions to ask, what to expect, and key details.

Sponsors

Lead Sponsor

The Hospital for Sick Children

Collaborators

Stanford University
Children's Hospital of Philadelphia
New York Presbyterian Hospital
University of Texas Southwestern Medical Center
University of Michigan
Children's Hospital Medical Center, Cincinnati
Provincial Health Services Authority British Columbia
Stollery Children's Hospital
Children's Hospital of Eastern Ontario
Royal Children's Hospital
Children's Healthcare of Atlanta
Primary Children's Hospital
Baylor College of Medicine
The Cleveland Clinic
Monroe Carell Jr. Children's Hospital at Vanderbilt
Children's Hospital Colorado
Indiana University Health
OHSU Doernbecher Children's Hospital
Children's Hospital Los Angeles

Age

0 - 18 years

Sex

ALL

Healthy Volunteers

No

Inclusion Criteria

•phenotype-positive patients diagnosed with hypertrophic cardiomyopathy
•phenotype-negative, genotype positive patients considered at risk for developing hypertrophic cardiomyopathy

Exclusion Criteria

•Neuromuscular, metabolic, syndromic (other than Noonan Syndrome and related RAS-opathies) or endocrine (including infants of diabetic mothers) causes of HCM
•(Other treatable causes of left ventricular hypertrophy (systemic hypertension, anatomic defects causing left ventricular outflow tract obstruction e.g. aortic stenosis, subAS, subaortic membrane, coarctation)

Related studies

Early Evaluation of Exosome Multiomics and Clinical Prognosis in Patients With Sudden Death

NCT06856993 · Sudden Cardiac Death, Exosome Multiomics, and more

Cardioverter DefIbriIlator PlacEMent for priMary Prevention of Sudden cArdiac Death in Patients Older Than 70 Years

NCT05373940 · Heart Failure, Primary Prevention of Sudden Cardiac Death, and more

Long Term Follow-up of Cardiac Arrest Survivors Exposed to Ultra-rapid Cooling

NCT07028372 · Cardiac Arrest (CA), Resuscitated Sudden Cardiac Death, and more

RECRUITINGPhase 1/2

Multi-center, Open-label, Single-ascending Dose Study of Safety and Tolerability of TN-201 in Adults With Symptomatic MYBPC3 Mutation-associated HCM

NCT05836259 · Hypertrophic Cardiomyopathy

HCMR Re-Imaging Study

NCT07054073 · Hypertrophic Cardiomyopathy (HCM)

View all related studies →

Data from ClinicalTrials.govLast updated on ClinicalTrials.gov: May 21, 2025Terms

Trial snapshot

StatusACTIVE_NOT_RECRUITING

Phase—

Enrollment572

Start dateJan 2017

Last updatedMay 21, 2025

Condition

Hypertrophic Cardiomyopathy Sudden Cardiac Death

For caregivers

Use Clareo to keep notes, questions, trial details, and next steps organized before and after appointments.

Start free trial →

Data Source & Attribution

This clinical trial information is sourced from ClinicalTrials.gov, a service of the U.S. National Institutes of Health.

ClinicalTrials.gov last update: May 21, 2025Data synced to Clareo: May 25, 2026

Modifications: This data has been reformatted for display purposes. Eligibility criteria have been parsed into inclusion/exclusion sections. Location data has been geocoded to enable distance-based search. For the authoritative and most current information, please visit ClinicalTrials.gov.

Neither the United States Government nor Clareo Health make any warranties regarding the data. Check ClinicalTrials.gov frequently for updates.

View ClinicalTrials.gov Terms and Conditions