Saves the questions and what to expect into your notes, next to the visit they belong to.
Keep this study
Lead
Mayo Clinic
Subjects will be recruited from among those seen at the Mayo Pulmonary Hypertension Clinic. The PAH-SYMPACT questionnaire will be administered either in written form or by telephone interview.
On the second 100 patients implement a standardized palliative care referral program for patients with Group 1 and 3 PH and high SYMPACT scores\> 1.0.
Age
18–any
Sex
ALL
Healthy volunteers
Not accepted
You may be eligible if
Age 18 years or above
Consents to participate
Documented group I PAH based upon these hemodynamic criteria: (mPAP \> 20, PCW 18 or less, PVR \> 3 Wood units
Mean PAP \> 20, PCW ≤ 18, PVR \> 3 Wood units
Parenchymal lung disease that in the opinion of the investigator qualifies patient as group III PH
Documented chronic thromboembolic pulmonary hypertension or chronic thromboembolic disease with intent to treat with surgery, balloon pulmonary angioplasty, and/or PH medication
You may not be if
Left sided heart disease (LVEF\<50%, PAWP\>18)
Any other known concomitant life-threatening disease with a life expectancy \<12 months
Any other clinically relevant and/or serious chronic medical condition that would affect study participation in the opinion of the investigator
Non English speaking
Clareo Health | Quality of Life Assessed With the PAH SYMPACT Questionnaire
