Saves the questions and what to expect into your notes, next to the visit they belong to.
Keep this study
Lead
University of Michigan
With
Patient-Centered Outcomes Research Institute
Virginia Commonwealth University
Temple University
University of California, Los Angeles
Seattle Children's Hospital
Age
Any age
Sex
ALL
Healthy volunteers
Accepted
You may be eligible if
Must be a parent/caregiver of a patient who is newborn through 5 years old (i.e., 5.9 yrs).
Patient clinical diagnosis of ambiguous genitalia (eg, 46,XX,Prader 2+; proximal hypospadias with uni/bilateral undescended testes) or sex chromosomes discordant with genital phenotype.
Condition must be newly ascertained where decisions regarding surgical procedures (internal or external genitalia), diagnostic testing, and/or other aspects of clinical management have yet to be made.
You may not be if
Turner syndrome, Klinefelter syndrome, bladder or cloacal exstrophy.
Clareo Health | Decision Support for Parents Receiving Information About Child's Rare Disease
